A 'lil HooHaa

Messing with the blogging world since 2005

health

Living with Diabetes: Medications and the ups and downs of it all

There are days when I want to scream when it comes to diabetes.

Like, top of my lungs, off the mountain tops, and filled with profanity sort of screaming. You know, the type that makes zero sense, but at the same time makes you feel a whole heap better. 

I mean, if it’s just for you, it’s not often a few cuss words won’t make you feel better … right?

Let me back this up a little to explain. 

At my last A1C test in November, my numbers had come down. I was happy about that, but the unfortunate part is that the past two tests had gone up … so I hadn’t been doing well. This made my primary and my diabetes educator each have a chat with me about kind of looking at what I was doing etc. I made a lot of changes since then and things are going well.

Living with Diabetes logo

They also suggested I might want to look into an injectable medicine – not insulin, but one of the weekly ones. I agreed to do my research and that I’d let them know. 

So I kind of went headfirst. I read about these medicines, such as Trulicity and Ozempic. I read reviews. I looked at all the possible side effects. I looked at the positives and negatives. I watched videos on how they worked and how I would have to use them. I emailed the diabetes educator with questions. 

I did my homework. 

In the end, I was actually highly interested. Knowing at least one of my medications would be cut in half and the hopes it would eventually be taken away because of using this medicine, I decided to give it a try. 

I chose Ozempic. 

I liked some of the studies and things to go with this medicine a bit more than the others. It just seemed like the right fit. I took the first dose in late December, and have done it weekly ever since. 

And I like the direction it’s going. 

My numbers as I check throughout the day have noticeably gone down. One app I use – mySugr – gives an estimation of your current A1C, based on the numbers you have in there. If this is remotely close, then I’m going to be stoked next time I go, which will be in about 2.5 weeks. 

And I can’t say if it’s Ozempic, but things are going in the right direction. That leads me to believe the medicine is working and working in a positive way. It’s easy to use and I’ve not felt a negative side to it. I also like that it’s easily stores.

One thing the medication is supposed to help with – suppressing appetite. I know this much – over the past few months, I haven’t been eating as much. I get full much easier, which is a good thing. I’m not usually one that gets excited about a new medicine. I’d rather subtract than add, but this has been really good for me so far. Here’s hoping it keeps going in the right direction and allows me to fully drop one other.

I’ve also been walking a ton more than I used to. I always made sure to walk, but I’ve been really good about getting up and doing the 5 am walk (during the main work week), and then one at night. 

Add all that up, and things are going very well in the right direction. 

Let’s go back to the screaming part, though. 

My one issue is the morning. Recently, my overnight readings have been awesome for my standards. It’s always been my hard area. But it’s been good. I get up, check my numbers and go for a walk. I can’t eat beforehand, as I have a medicine I take that needs to be in me for 30 minutes before I eat. So I go take a walk, come home and get ready for work and then eat. 

Now, I realize because there’s nothing in my body, my numbers could rise (they usually do a little), but there are days where it goes way up. I don’t understand how one day it pops way up, other days it goes up a little, and other days it stays the same or goes down a little. 

It makes no sense. 

If there was a small bit of fluctuation one way or another, I get it. Or if it always went flying up. But it’s so random how things go. 

I’ve tried getting up earlier, taking the medicine, going back to bed and then eating before my morning walk. That didn’t work out well. For one, there’s no time for the food to digest, so walking isn’t the best. But my numbers never improved all that much from it, and oftentimes – again – got worse. 

So I am at a standstill. I’m not sure how to approach this or what to do. I have appointments March 3, so this will be on my question list. 

I know this is an endless fight. I know there are times I’m going to want to scream and there are times I pump my fist knowing I am going in the right direction. But I also realize there will always be frustrations with this battle. 

For anybody reading this … do these things happen to you? And if so, what do you do about it? I’m open for ideas and suggestions!

Feel free to leave a comment, or e-mail P.J. at hoohaablog@gmail.com. Also, please “Like” HooHaa Blog on Facebook! You can also follow me on Twitter @softball29!

Living with Diabetes: Plugging away

As I start to plan out being a bit better about the blog, I realized I hadn’t run one of these since November – and before my last blood test. 

Shame on me!

If you recall from last time, my A1C (long-term blood sugars) had gone up a bit dramatically. I got spooked with the talk of insulin and realized I had been a bit aloof about the whole situation. 

In fact, the last time I posted about this, I gave myself a bit of a plan of action. Thus far, it seems to be working. 

Let’s recap where I went in 2019. My A1C in January of last year was pretty good. I was trending in the right direction and seemed to be doing things the right way. 

Living with Diabetes logo

I got into the Freestyle Libre, which when I wore it and it stayed on my arm, was awesome. I could check my readings a lot. But, when it popped out or one ended, I tended to lax. 

And when that happens, that means I’m not checking and “think” I know what I am doing. 

I don’t. 

So the next two blood tests didn’t go as well as the first – my numbers went up 1.6 points at the May appointment, and another point in August. 

Needless to say, my primary wasn’t pleased. I went to work on it and started keeping track of things a lot better. When November came around and it was time for my blood test, I was cautiously optimistic. 

It’s dropped 1.1 points. 

Am I where I need to be? Not yet. But I’m getting there. 

The next thing my primary though was… what are my thoughts on injectables. Not insulin, but the long-range medicines. He wasn’t telling me I had to do it, but to think about it. 

I talked to the diabetes educator I see and she thought it would be worth thinking about. By doing this, one of my other medicines would become a lower dose with the possibilities of it being taken away. 

Over the next month, I did a lot of research on the main players. In the end, it seemed Ozempic would be a good match for me. In the end, I decided to give it a go. 

For four weeks, I’ve used this. It seems like it is helping my daily sugars, mixed in with the exercise and everything else I am doing. I still have a ways to go, but I seem to be trending in the right direction once again. I’ll expand on this medicine and my thoughts in February’s post. 

Some things have been harder than others, but everything is working well. I’m doing walks on a regular basis and trying to get myself feeling better overall. I push myself and I watch things. I sometimes still get higher readings and it’s frustrating because I can’t always pinpoint why it’s happening. My other issue is the morning and trying to figure out how to get it all to work well, especially mixing in a morning walk. 

In time, I am sure. 

I’ve changed some habits and am being much more cognizant about everything I am doing. I just have to stick with it. 

My other goal here is to stay more on top of this feature on the blog. I found in the past when I was doing this monthly, it allowed me to reflect and look to what was working and what wasn’t. In the coming months, I’ll have a range of topics to cover, as well as the personal updates. 

I realize some of my other past goals, namely a food journal, haven’t been going as planned. That is still on my radar, but I’m trying to figure the best way for me to pull it off.

It’s an endless fight and it’s one I will keep at because it’s the only thing I can do.

Feel free to leave a comment, or e-mail P.J. at hoohaablog@gmail.com. Also, please “Like” HooHaa Blog on Facebook! You can also follow me on Twitter @softball29!

Focusing on life and getting out more

“It comes down to a simple choice, really. Get busy living. Or get busy dying.”

Those words echo toward the end of the Shawshank Redemption. Words spoken by Tim Robbins’ character as he sits in prison for a murder he did not commit as he talked with Morgan Freeman’s character.

Not too much longer, Freeman’s character, free on parole echoes the words.

“Get busy living. Or get busy dying. That’s goddamn right.”

Over the past year and change, I’ve worked to get myself into better health. I’m not where I need or fully want to be yet – lots more weight to lose and still needing to control the diabetes much better, but I’m on the right path.

Now it’s time to work on other things to go with that.

The area in which I live – central New York – has so much to offer. There are amazing things to see and do and places to get outdoors and explore.

If you expand a bit – into Northeast Pennsylvania, for example, the activities and opportunities become even more.

I love the outdoors. I love the indoors as well, don’t get me wrong. I mean a night of television or messing on the computer is a good time, but being outdoors is a lot of fun and it doesn’t require going through the middle of woods, bushwhacking, and things like that.

Get out and explore!

Instead, there are wonderful trails to wander and see; nature to enjoy and photograph; and plenty of wildlife to see and admire. There are man made and natural made areas that are amazing to the eyes. And though my interest in the bulk of geocaching has waned recently, there are plenty of them to find out in the woods. I’d like to explore some bike trails, too, and just wander along and enjoy the atmosphere. I’m looking to eventually invest in a bike rack/kayak rack for my car, as well as a kayak. That would be something I’d like to do more in the warmer months.

And I never will forget about baseball in the summer!

There are urban developments with some fantastic museums and activities not far away. There are ways to broaden your horizons and see different things within a semi-quick car ride. Breweries and great places to eat are everywhere now. There’s definitely things to do.

So maybe it’s time to start doing things like this.

One thing I really want to get back into is more photography. Because I do it so much during my professional day, I tend not to take my main camera when out and about. I mean, the iPhone is a wonderful tool – it really is. But I miss using the camera and different lenses… or pushing things to see what I can create. Especially when it comes to things like waterfalls and covered bridges, and other items that really interest me.

In the grand scheme of things, life is short. Even if you are one of the lucky ones who lives to 100 or a bit more, that’s just a speck of time when considering how long some form of life has been on Earth. So while you are here, see things. Do things. Live things.

I can’t say I’m always going to follow this mantra. I’m just as guilty of plopping down on the couch for some television or hours online. But if I’m going to do that – I need to make sure I’m balanced and I get out and see some wonderful things as well.

My DayZero list is a start.

On January 1, 2019, I started my third round with the DayZero Project. I have on it more than the 101 goals because I need to trim. I’ve looked to see what is something that can be done – be it hard or not – as compared to dreams. This is a starting point as some of it gets me outdoors.

I have life goals and life plans and hopes – all of which intermingle with one another. But as the two characters in the Shawshank Redemption noted – get busy living, or get busy dying.

In the past couple of months or so, I think I’ve gotten busy living – at least in some aspects. And my mental being seems to be doing much better. But there’s still a lot to grow from and I look forward to trying to do more (to be fair, it’s much easier to do in warmer weather).

The world is a wonderful place if you find the right angle. Now get out and find it. 

Feel free to leave a comment, or e-mail P.J. at hoohaablog@gmail.com. Also, please “Like” A ‘lil HooHaa on Facebook! You can also follow me on Twitter @softball29!

Living with Diabetes: Awareness

Today is International Diabetes Day.

It’s a day for awareness. And it’s a day those living with the disease really can reflect (though, to be fair, that is something one should do daily). For me, it’s a day to look back over the past few months to see where I’ve come since my last bout of “rock bottom.”

The last A1C reading I had went up quite a bit to the point where my primary physician said I need to start figuring this out or I might have to think about the “I” word. And that is not somewhere I want to go – now or ever. On another note, there are things now that can work in lieu of it, but I don’t even want to do that. I need to work on improving this without adding more medication.

In a perfect world, I’d like to subtract.

One thing he noted at my last checkup was that as we get older, sometimes it’s not what you do – it’s just your body. Still, I know there’s a lot I can do before that is the decision that has to be made. For one, taking care of myself better and I think I am doing just that. 

Since that last checkup in August, I’ve done a lot more:

Watching numbers: I’ve been diligent about checking my blood sugars, and have made a Google Sheets setup to be able to keep everything together. I have color-coded number so I know when I’ve been in range, closely out of it, and way out of it. This is something I’ll be able to print out and bring to my next appointment. 

I know I have to do better with keeping a food journal as I think that will help me look back and reflect on why my numbers may have gone up or down.

Exercise: I’ve kept up with walking. Though my goal is to do a couple of dedicated walks each day, that doesn’t always happen. I always get one and always make sure to get at least 30 minutes of exercise. The Apple Watch has been a huge addition to me. To some it may sound silly, but closing those three rings each day is big to me and I am doing what I can to keep it up. That has helped immensely.

With this, I also keep several Google Sheet files so I can track my walking and steps each month and see where I’ve gone up and down.

Eating habits: This is still an area to keep improving, but I’m getting better. I watch my portions. I watch what goes into my body. From the end of July until the end of October I didn’t have a piece of candy, and even since then, I’ve only had a couple. When I do it, I make sure it’s small, and that I haven’t already been eating a ton of carbs. I usually also try and do it when I am going for a walk right after.

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The thing is – these items I have worked on have shown improvements. My numbers have come down over time. I still have some numbers that go up , but now I can usually figure out what made my blood sugar jump. Don’t get me wrong, I’m by no means perfect. But I do think I’m truly moving in the right direction and hopefully it will continue.

Speaking of that, what kind of things can I do to keep moving in the right direction?

Things to keep working on:

Exercise. I can’t lax off, even when it gets cold. If I stop, that’s when things go wonky. It takes time to get yourself going right and I can’t lose my months-long work over laziness. And hey, I know I’m not getting any younger. I have aches and pains like anybody else. But, eventually. I want to jog/run a bit more. I know I can get down to a 13-15 minute mile (I’m at 18-19 when I’m just walking) if I push myself and that’s my goal. I’d like to actually run in a few 5Ks and know I didn’t walk it all. The couch-to-5K program is something I am looking into. 

Food journal: Now that I feel I have gotten things better in regard to eating habits, it’s probably time to keep a food journal. But here’s the thing – I’m not sure how I will be with watching calories and things like that. Some things are hard to find the nutritional info, so I just need to be smart. But, a general food journal (this is what I had for dinner etc.) will be helpful with different things.

Apple Health: Being an iPhone and Apple Watch user, I’ve really gotten into the Apple Health things. But the main app is pretty in-depth and intense and I want to do more with it. There are other apps I looked into, but some just didn’t have what I wanted to see. There are a few I want to revisit as I continue along this journey to become healthier and I think they will help. As I check them out, I might blog about them as well.

Apple, at their stores, hold free classes to help with some of these items. I might look to see if I can get into one or two of them over the holiday season when I have some time off. I always have said I want to try and find a way to keep things on one app.

Start utilizing other apps: This seems like so 2019 – but I have several apps that I think can work well with my battle. The key is getting my glucose reader to actually sync up with my phone (which, for some reason, it’s not doing even though my Bluetooth says it’s connected). One of the apps I want to use is mySugr, which helps you keep track of your sugars, which might allow me to get rid of the spread sheets eventually. Again, it would be nice if these apps all connect to one spot (a lot can connect with Apple Health) so I can see things in one spot.

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I like the direction I am heading. My next blood test will be done the weekend before Thanksgiving, and I’ll have my next appointment a couple of days before Thanksgiving. Though I don’t know if my A1C will be a drastic improvement, I am confident it will be going down and an improvement. I’m excited to see it though and hope I can stay on the right path.

Thing is, when I was using that reader that stuck in my arm for 10 or so days, I did well because I had constant feedback. I’ve found with the Google Sheets I can check and see the color coordination to know where I’ve been and where I still need to go. 

It’s a battle I continue to work at and hopefully I will keep going in the right direction!

Feel free to leave a comment, or e-mail P.J. at hoohaablog@gmail.com. Also, please “Like” HooHaa Blog on Facebook! You can also follow me on Twitter @softball29!

Living with Diabetes: Getting back on track

It’s been a while since I wrote one of these posts. 

It should also come as no surprise, then, that I’ve gone a bit off track. If I don’t hold myself accountable, then I tend to start veering down the wrong road. 

So let me kind of go backward and then move forward again. 

So at one point (October 2018), I hit a point where my numbers were all out of whack. For my first two A1C tests in 2018, things were improving and going down. Then in October, it ballooned. 

Like a lot. 

So it was time to figure things out a bit more. I worked on getting a Freestyle Libre. I actually used this before then, I believe, For those who don’t know what a Libre is, it’s an item you put in your arm (it’s a mini needle attached to a sensor that is about the size of a quarter, though thicker) and you use a reader against the sensor to get your numbers. 

Living with diabetes logo

For me, it was nice because I could check myself a whole heap more, and not have to worry about pricking my fingers. It also went to my phone, so I could see the history a lot easier. 

Alas, there were issues with the Libre. It wouldn’t always stay in my arm. It would get off readings. When it was working, it seemed legit. Any time I matched those readings with the old fashioned way, it worked well. 

But for the price (my insurance didn’t cover it fully), it was tough. 

Then Freestyle switched the Libre from 1o days (on your arm) to 14 days and it really got bad. The sensors wouldn’t stay on, and the readings seemed a lot more wonky. 

During this whole time, mind you, I wasn’t as diligent about checking the old fashioned way. And because the arm was sensitive after a sensor came off, I would wait a day or three to put a new one on. That wasn’t smart. Why? Because I *thought* I knew what everything did to me. 

I didn’t. 

The story of my life with this diabetic journey seems to fall in the same way and I have to figure out how to change the narrative. 

So in January, things seemed to be pointed in the right direction. In May, my A1C went up, but not fully alarming – but enough to say “hey, get back on track.” And with the whole Libre thing really got me off track as well as … I don’t know. Not to make excuses but I thought I had it under control to, at least, keep it status quo. 

It wasn’t and my A1C again went up. 

Obviously, it’s frustrating. But at the same time, I only have myself to blame. So, back to the drawing board I went. 

How to replicate things was my biggest quandary. The old-fashioned checker I use is supposed to hook up to my phone, but for whatever reason it hooks up via bluetooth and then doesn’t get any readings. So, instead, I made a Google sheet to keep track of things. I’ve color-coded things so I can see when I’ve gone high, am in the right zone and all that. 

It’s my hope this will really start keeping me on track. 

That comes down to what I am doing with things, though. I’ve made sure I’ve kept walking, but I think incorporating a second walk daily is probably a good idea. That helps things quite a bit it seems, so it’s just making sure I can do it most days. The other day I even got in a three-mile bike ride, which was also nice, As the fall is upon us, I’ll be more apt to do these as well as the weather is nice for it. 

I’m also going to get back into writing about this whole thing on the blog once a month. I find when I get my thoughts out there, it helps. 

Some things I need to work on: 

– Portion control for meals

– Check my blood better

– Figure out the whole morning thing (numbers OK, then go up and all…I have some things I’ve tried)

– Think about the long-term

When I was at my last doctor’s appointment, he said  – sometimes you can do everything right and it still doesn’t improve. As we age, the body is different. If things don’t show enough improvement, he wants me to think about other options. I am not into the “I” word as I think it can be avoided. But something like a Trulicity might be something I have to think about. 

Hopefully, I can really start losing a bit more weight, stay active, and do what I need to do so it won’t matter. But only time will tell. 

My next appointment is the week of Thanksgiving, so I have about six weeks before my next blood test. Hopefully when those come back, I’ll be pleasantly surprised.

Feel free to leave a comment, or e-mail P.J. at hoohaablog@gmail.com. Also, please “Like” A ‘lil HooHaa on Facebook! You can also follow me on Twitter @softball29!